Awareness: Life With GP

Do you have GP? Are you the caregiver of someone with GP? Do you know someone with GP? If so, would you please answer these 36 question so we can bring awareness to this debilitating disease and make a difference as we write the story of ‘Life With GP’.

  1. What does Gastroparesis mean to you?
  2. Why does it need awareness?
  3. Post a Picture of you before GP.
  4. How are you feeling today (be honest)?
  5. What symptoms do you show? (See Gastroparesis)
  6. How do you deal with them the best?
  7. How do you spend your days?
  8. What do you look forward to most everyday? Why?
  9. What makes you the happiest? Why?
  10. What do you say to yourself when you need encouragement?
  11. How do you cope?
  12. What is your favorite quote? Why?
  13. How long did it take for you to be diagnosed? How long have you been diagnosed?
  14. Who are your #facesbehindGP? Post a selfie with them.
  15. Who do you included in your support system?
  16. What does the color Green mean to you? Yellow?
  17. What does the animal Zebra mean to you?
  18. What GP item do you most relate too (meme, blog, article, research, …) ?
  19. Post one picture that tells the most about your battle.
  20. How do you tell people about your illness?
  21. Do you have any other illnesses? Which ones?
  22. Are you considered to suffer from malnutrition? Have you lost any of your hair?
  23. How many doctors do you see? Are they helpful? Which one is the most helpful (which discipline)?
  24. How many and what meds do you take for GP? How do you take them?
  25. Post a hospital selfie.
  26. If GP were to send you a message, what would it say?
  27. What is your major form of nutrition?
  28. How do you set up your feedings? (if you have a tube)
  29. What are some foods you miss?
  30. Take part in #TakeABite4GP campaign.
  31. What is your favorite flavor?
  32. Tell us something good about GP; something bad.
  33. What activity/event do you miss doing the most?
  34. What goals do you have for the future?
  35. How are you helping to bring awareness to GP?
  36. Post a Green picture.

GP Awareness Ribbon 3

3 Dozen 4 GP

Gastroparesis …

GP Awareness Ribbon 2Gastroparesis literally translate to “paralyzed stomach.” The Reader’s Digest version is if someone with Gastroparesis eats a meal, it will either take a long time to digest or it just sits in the stomach and will not digest. Because of this, the following symptoms usually occur:

  • upper abdominal pain
  • not feeling hungry
  • abdominal bloating
  • early appetite satisfactions
  • abdominal spasms
  • erratic blood glucose levels
  • diarrhea
  • nausea
  • constipation
  • vomiting
  • fatigue
  • reflux
  • weight loss
  • weight gain

Every person diagnosed with Gastroparesis has a different degree of severity and cause. Usually, damage to the Vagus Nerve or Diabetes are the major causes of this debilitating disease. Others have what is called Idiopathic Gastroparesis, which is an arising spontaneously or from an obscure or unknown cause. There is no found reason as to why the stomach stopped working in this case. Doctors can guess, but there is no way to test to confirm these theories, yet.

A doctor at the Cleveland Clinic has said that a third of patients diagnosed with Gastroparesis will get worse; a third of people will manage to plateau and live with it on a roller coaster throughout life; and a third of people will actually get better. There is no cure for this condition, just symptom management at this time.

There are not great odds, but with awareness and more research we hope and pray that one day someone will find a cure for this rare, invisible illness.