We do and I am not talking about the kind in your car or in a grill. I am talking about the kind in your body, Gastrointestinal (GI) issues. When these things come into your like, your whole life changes. You have to think about what and how you do things, as well as, when and where you do them.
You want to know what am I talking about, then check to the last post entitled – What is Gastroparesis? . However, this post is about finding a ‘New Normal’. Normal does not exist any more. Each day is a trail as to what is going to be done. One day you may think you can run a race, but halfway through it you realize that you have taken on to much and have to get a DNF for the race. Then there are days that you just want to stay in bed and rest because either the pain is so bad you do not think you can do anything or you just want to be left alone because you do not want to see people in your condition.
People with these symptoms are thought to not have serious issues or illnesses. I am here to let you know this is not the case. My wife has been dealing with Gastroparesis (GP) for a few years now, and these are just a few things that we deal with on a daily basis. Her days are all she can make them, with the activity level changing by the minute.
If you know or hear of people in this type of a situation, please keep them not only in your daily prayers; but on your daily to do list. Just do me a favor and listen to the words of Michael W. Smith in his song Friends and remember to keep them close because, “(it) keeps them strong and a friend will not say never, because the welcome does not end.”
Please remember to keep a check on the sick and elderly on a regular basis, so that they know they are not forgotten and that they are love them.
I would like to take a moment to inform you all about an uncommon disease. My world has been turned upside down for a while now. I am not complaining in the least little bit; however, I do want to let everyone know what is happening. A little over a year ago I was diagnosed with Gastroparesis (GP).
You may ask, What is GP? GP, also known as delayed gastric emptying, is a disorder that slows or stops the movement of food from the stomach to the small intestine. Normally, the muscles of the stomach, which are controlled by the vagus nerve, contract to break up food and move it through the gastrointestinal (GI) tract. The GI tract is a series of hollow organs joined in a long, twisting tube that runs the entire length of the digestive system, from the mouth thru the butt hole. The movement of the muscles in the GI tract, along with the release of hormones and enzymes, allows for the digestion of food. GP can occur when the vagus nerve is damaged by illness or injury and the stomach muscles stop working normally. Food then moves slowly from the stomach to the small intestine or stops moving altogether.
The later of these two options is where I now stand, as my tract is completely shut down and live off of a special nutritional formula – total parenteral nutrition (TPN) – that is taken in thru a Hickman Line, that is surgically place into my chest.
I hope this helps you understand a little better about what my world is like and can see a little into a day in my life. If you are interested in helping people with GI issues, then I would like to ask you to contact me. I am looking for people that are willing to help make a difference in this world. It is a long road back to a normal lifestyle for people that are affected by GI problems, but together we can make a difference.
Who would have ever thought you could transplant a digestive tract or even reconstruct it? We had no idea but we also had no idea that your digestive tract could be paralyzed either. Kirsten has just that, a paralyzed digestive tract, also known as Gastroparesis and/or DTP digestive tract paralysis. The medical research in our country is amazing and Kirsten being accepted into the intestinal transplant program proves this and will help pave the way for others who are also battling this debilitating disease. There are very few treatment options for Gastroparesis and one is a bypass, Kirsten has had that and another is a total gastrectomy and Kirsten has had that too. Unfortunately the lack of motility in the rest of her digestive tract just made things worse. This disease literally turns your life upside down. It affects other organs and just wears on those affected and their family and friends. Many in the medical field do not know much about Gastroparesis but we will continue to spread awareness no matter the outcome for Kirsten. Right now we know there is a glimmer of hope to get back to some normalcy and that is our main goal.